The "Camp Rock" movies brought columnist Halsey Blocher comfort during health challenges, but she never imagined where it ...

When she is upset that her body fails to react the way she wants it to, columnist Connie Chandler remembers that she deserves ...

Newborn screening followed by treatment improved survival, motor function, and milestone achievements in SMA type 1 in Turkey ...

Columnist Sherry Toh shares some of the cost concerns that continue for SMA patients in Singapore, despite government aid.

Columnist Brianna Albers goes to a great hospital. So why is she scared about a somewhat routine cortisone injection?

Connie Chandler is a Christ-focused care and support specialist at the nonprofit organization Joni and Friends. She grew up in the foothills of North Carolina but now owns a home and lives in Fort ...

Managing SMA extends far beyond the walls of a doctor’s office. Standard clinical metrics and symptom checklists are essential for tracking the disease, but they don’t capture what it actually feels ...

SMA is a neuromuscular condition that causes muscle weakness and can affect mobility and daily activities. The upcoming webinar will explore relationships, careers, and travel as part of everyday life ...

Over the course of three days, I recently had the joy of attending three live music concerts, each with its own distinct setting, energy, and story. I knew the performers, I loved the music, and I was ...

A study in adults with spinal muscular atrophy (SMA) found that Evrysdi (risdiplam) helps the body produce more functional SMN protein, and also revealed molecular differences between SMA types 2 and ...

I recently wrote about how I’ve been in the process of transitioning from a children’s hospital to an adult hospital. It’s meant saying goodbye to the place that knew my medical history better than ...

My caregiver held the toothpaste tube in both hands, meticulously squishing it flat from the bottom all the way up to the nozzle. I laughed: “It’s OK, I have a whole new tube ready to go in the closet ...